Lordogenetisches Mittelliniensyndrom wird unsere Erkrankung jetzt bezeichnet. 90 % der Erkrankten sind junge Frauen und Mädchen. Meine Beschwerden begannen auch schon mit der Pubertät. Die Krankheit gilt als sehr selten, aber ich bin der Meinung, sie ist viel häufiger als angenommen. Jeder von uns wird zuerst in die Psychoschiene geschoben. Viele werden auf Magersucht oder eine andere psychosomatische Erkrankungen behandelt. Wer stark genug ist zu kämpfen und über den Austausch im Internet die entsprechenden Spezialisten findet, der hat Glück. Er muss sich dann aber auch noch manche Untersuchungen leisten können und die weiten Anreisen zu den Ärzten in Kauf nehmen. Wenn dann endlich die Diagnose gesichert ist, dann kann man über eine Operation nachdenken. Ich entschied mich erst dazu, als so gar nichts mehr ging trotz Opiate. Nun 9 Tage nach der schweren Operation esse ich normale Schonkost ohne jegliche Beschwerden. Was das an Lebensqualität schenkt, weiß jener, der davon betroffen ist.
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1. internationale Wilkie-Treffen 2015
"steriler" Arbeitsplatz in Kenia
in der Schulküche
Rumänien 2016
Heuwagen
Alltag mit dem Infusionsrucksack
auf der Farm in Kenia
Benedictus-Chor
Familienbesuch bei Kanze
Spiel und Spaß
