Heute ist der weltweite PURPLE DAY für das AMS-Syndrom, also der LILA Tag für das Wilkie-Syndrom. Auf der ganzen Erde tragen heute Menschen lila, die auf diese Krankheit aufmerksam machen möchten. 0,013 % sind wenig, aber genug um darauf aufmerksam zu machen. 1 von 3 stirbt an dieser Krankheit. Samantha aus den U.S.A. hat sie knapp überlebt. Sie hat die Stationen ihrer Krankheit verfilmt. Heute zitiert sie auf Facebook Joh 11,4 "Diese Krankheit wird nicht zum Tod führen, sondern dient der Verherrlichung Gottes". In mein Leben übersetzt, kann ich das bestätigen. Durch meine Krankheit sind mein Glauben und mein Mut, ihn zu bezeugen stärker geworden.
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Alltag mit dem Infusionsrucksack
Rumänien 2016
Heuwagen
auf der Farm in Kenia
Familienbesuch bei Kanze
1. internationale Wilkie-Treffen 2015
Benedictus-Chor
Spiel und Spaß
"steriler" Arbeitsplatz in Kenia
in der Schulküche