Gastroparese - Magenlähmung nennt sich meine "neue" Krankheit, die eine Folge des Wilkie-Syndroms wäre, sagt der Spezialist. Seit gut einem Monat schaffe ich es tatsächlich ohne parenteraler Ernährung. Mal geht es besser, dann wieder schlechter. Das Medikament, das dagegen helfen sollte, wurde von der österreichischen Krankenkasse abgelehnt. Auch in Deutschland ist eine Bewilligung schwer zu erreichen. Der Grund: das Medikament ist nicht für diese Erkrankung zugelassen. Aber es würde helfen. Also bleibt nichts anderes übrig als mit der Einschränkung zu leben. Ich versuche einen möglichst normalen Alltag. An manchen Tagen bleibt dies allerdings nur ein Versuch.
Warning: is_file(): open_basedir restriction in effect. File(/images/th/IMG_1650_web_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/In-der-Schule--5_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/th/20170211_100109_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/th/IMG_0905-1_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/Chor_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/Farmprojekt-3-nach-dem-Melken_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/th/Alm20160909-6web_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/DSC01846-1_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/IMG_0258_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/berg_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/th/17310104_1498735776803470_7708443121387633781_o_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/th/Einkehrtag-Pettenbach2016_3web_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/Hausbesuch_th.jpg) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Warning: is_file(): open_basedir restriction in effect. File(/images/slideshow/th/Ich-als-Patientin-1_th.JPG) is not within the allowed path(s): (/home/.sites/274/site1399/web:/home/.sites/274/site1399/tmp:/usr/share/pear:/usr/bin/php_safemode) in /home/.sites/274/site1399/web/libraries/src/Filesystem/File.php on line 649
Rumänien 2016
Heuwagen
in der Schulküche
1. internationale Wilkie-Treffen 2015
Benedictus-Chor
auf der Farm in Kenia
Alltag mit dem Infusionsrucksack
Spiel und Spaß
Familienbesuch bei Kanze
"steriler" Arbeitsplatz in Kenia
