Benedictus-Chor
1. internationale Wilkie-Treffen 2015
"steriler" Arbeitsplatz in Kenia
auf der Farm in Kenia
in der Schulküche
Alltag mit dem Infusionsrucksack
Rumänien 2016
Heuwagen
Familienbesuch bei Kanze
Spiel und Spaß

 

My childhood and youth I spend on the little farm of my parents in the south of Upper Austria. After commercial college I am long engaged in tax. Incidentally, I do volunteer work in a nursing home and in a hospital. After 11 years of working with numbers, I decide to do my volunteer work for a full-time. I'm studying theology and change into hospital chaplaincy.

My expertise that I earn me during clinical pastoral education in Landesklinikum Salzburg is supplemented by my own experience of illness. My first serious experience I have to do with 7 years. The first (and not last) time I am very close to death. My complaints are more and more diverse over the years of life. My inner strength and my faith will help me, still be successful in a job to do voluntary social work and can even climb 3000. With 32 years so it's over. Strong heart problems make their appearance. Five years later, I get my first coronary. Meanwhile, I have a riding accident. Several years opiate and pain are (partly even today) the result. With 39 years I have to resort to crutches because of strong rheumatic problems temporarily. Once I have the symptoms under control, I board with an extra dose of cortisone and painkillers my small local mountains. With 40 years I have to say goodbye to my professional life. Two years later, doctors discovered a rare disease in the abdomen, 16 years after the first visit to the doctor. In those two years, I spend most of time in hospitals, on the artificial feeding and strongest painkillers. My book How I survived a rare chronic and painful disease. The hooves of a zebra gives an insight into this time.

In 2007-2013 I hang very often on the artificial diet. Recently I feed myself on a port home via the vein. In July 2013 I find "random" the global specialist for my abdominal vascular disease (Wilkie's syndrome). The end of July, I will operate in Duisburg (Germany). After very hard weeks after surgery, I can eat normally again. It is a new feeling. On March 21, 2014, the switch is again on pain and this is called a relapse. Since then, I eat most of the time the vein. The feed backpack has become a part of my life. (See: On the way to normal life)

I take my disease at hand. With and through them I became to life and survival artist. Every day I am talking about the gift of my life. It is not self-evident.